UK researchers say that more safety studies are needed for newer drugs being given to children with epilepsy.
Many medicines are not tested on children prior to being licensed because of the difficulties of including children in clinical trials. This means that consultants have to rely on experience and estimate a safe and effective dose based on the age and size of the child. More information here.
According to Dr Colin Ferrie, a consultant paediatric neurologist at Leeds General Infirmary, "when you are prescribing a drug 'off licence' to a child, it's important to let the family know exactly the implications of this."
Perhaps it would be wise for parents to request information about drugs, anti-epilepsy and others, that are prescribed for their children.